Registration Free but mandatory at the Symposium Registration form Preliminary Programm
Session Topics
Speakers
08:30-08:45
Welcome Message
Dulce Quelhas Elisa Leão Teles (host) Paul Harmatz (host)
08:45-09:15
A decade in review
Paul Harmatz Introduction by Elisa Leão Teles
09:15-09:30
Epidemiology of MPS Disorders in Portugal
Lúcia Lacerda
09:30-10:00
MPS Signs and Symptoms FIND: The Importance of an Early Diagnosis
Laura Vilarinho
10:00-10:15
Multidisciplinary Approach to MPS
Luísa Diogo Patrício Aguiar
10:15-10:35
Bone Disease in MPS
Klane White
10:35–11:00
Coffee Break
11:00-11:20
Ocular Features in MPS
Augusto Magalhães
11:20–11:40
Cardiac Disease in MPS: Diagnosis and Treatment
Christoph Kampmann
11:40–12:00
Respiratory and Neuro-physiologic Monitoring during Anaesthesia in MPS Patients
Guirish Solanki
12:00–12:20
Treatment options for brain disease in MPS
Mireia del Toro
12:20–13:30
Panel Discussion MPS: Past, Present, Future
Debate Chaiperson: Marina Caldas Elisa Leão Teles Paul Harmatz Lúcia Lacerda Laura Vilarinho Luísa Diogo Patrício Aguiar Klane White Augusto Magalhães Christoph Kampmann Guirish Solanki Mireia del Toro