Professor Jean-Charles DEYBACH, MD, PhD, (born 1947 07 31) was for 25 years Professor of Biochemistry and Molecular Biology at the Faculty of Medicine, University Denis Diderot Paris 7.
From 2000 to 2016 he was the head of the Department of Biochemistry and Molecular Genetics at Hospital Louis Mourier – Assistance Publique Hôpitaux de Paris (APHP), Director of the French Reference Center for Porphyrias (CRMR Porphyrias).
He launched in 2001 the European Porphyria Initative (EPI) to built a dedicated porphyria network in Europe. Funded as a pilot project by EU Commission he became from 2007until 2013 the main coordinator of the European Reference Porphyria Network (EPNET) which links 36 European countries. From 2014 to 2018 as the interim President of EPNET he helped to set up a new independent EPNET association which was officially launched in Oct 2018.
As member of a research unit INSERM U 1149 located in Faculty of Medicine University D. Diderot Paris 7, he has more than 35 years experience on research in heme biosynthesis and related disorders and mainly contributed to the recognition of enzymatic, genetic defects and pathophysiology in human porphyrias (up to 240 peer reviewed publications).
As a MD and with his team in Louis Mourier Hospital he had in charge the management of the porphyria patients from France through the unique Reference Center for Porphyrias (CRMR Porphyrias)
Since September 2016 he is Professor emeritus at the University Denis Diderot Paris 7 and as the head of the Biochemistry Department at Louis Mourier Hospital. However he still act as a part time medical consultant at the French Porphyria Center, as a member of the research unit Inserm U1149 and is still active at the European level as Honorary President of the European Porphyria Network association (EPNET).