16th International SPDM Symposium
14th November 2020
Lux Lisboa Park Hotel, Lisbon

“MPS & The 5 Senses”
Preliminary Programme

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09:00-09:15  Opening & welcome SPDM Chairperson: Daniel C. Gomes
SPDM President: Teresa Cardoso 
  Session I​ Chair: Teresa Cardoso
09:15-09:35  Summary of the International Meeting Schuan-Pei Lin
(Lecture via interactive video conferencing)
09:35-09:55  Aging of MPS patients Christina Lampe
09:55-10:15  Patient-reported outcomes, ADL and QoL in MPS James Jarrett
  Session II Chair: Elisa Leão Teles
10:15-10:25  MPS and the 5 senses  
10:25-10:45  Vision Augusto Magalhães
10:45-10:50  Workshops Introduction Elisa Leão Teles
10:50-11:30 Sensory Workshops & Coffee Break
11:30-11:50 Hearing Carla Moura
11:50-12:05 Taste & Smell Borges Dinis
12:05-12:20 Joana Rombert
12:20-12:35  Touch João Cabral
12:35-12:50 Mafalda Pires
12:50-13:05  Discussion  Chair: Luisa Diogo
13:05-13:10  Conclusions  Anabela Oliveira
13:10-13:30  Patient Testimonial  Chair: Esmeralda Martins

 MPS & 5 senses Speakers & Chairs:

  • Dr Daniel Gomes, Internist, Hospital de Santa Maria – CHLN, Lisbon
  • Dr Teresa Cardoso, Internist, Hospital São João - CHSJ, Porto
  • Dr Schuan-Pei Lin, Pediatrician and Geneticist, MacKay Children´s Hospital, Taipei, Taiwan (Lecture via interactive video conferencing)
  • Dr Christina Lampe, Surgeon, Center for Rare Diseases Department of Paediatric and Adolescent Medicine at Dr Horst Schmidt Kliniken GmbH in Wiesbaden, Germany
  • James Jarrett, Health Economics and Outcomes Research, BioMarin, London, United Kingdom
  • Dr Elisa Leão Teles, Paediatrician, Hospital São João - CHSJ, Porto
  • Dr Augusto Magalhães, Ophtalmologist, Hospital São João - CHSJ, Porto
  • Dr Carla Moura, Otorhinolaryngologist,  Hospital São João - CHSJ, Porto
  • Dr Borges Dinis, Otorhinolaryngologist,  Hospital de Santa Maria –CHLN, Lisbon
  • Dr Joana Rombert, Speech therapist, Hospital de Santa Maria  –CHLN, Lisbon
  • Dr João Cabral, Orthopedist, Hospital Pediátrico – CHUC, Coimbra
  • Dr Mafalda Pires, Physiatrist, Hospital D. Estefânia – CHLC, Lisbon
  • Dr Luísa Diogo, Paediatrician, Hospital Pediátrico – CHUC, Coimbra
  • Dr Anabela Oliveira, Internist, Hospital de Santa Maria –CHLN, Lisbon
  • Dr Esmeralda Martins, Paediatrician, CMIN-CHP, Porto